Thank you for your interest in MigraineSmart on Evidation. This program is intended to help you track and understand your experience living with migraines in new and different ways. As part of the program, you will be given the opportunity to track your migraine experience, receive feedback related to your migraine symptoms, and receive a monthly report that includes additional details about your symptom experience. Please be aware that this program does not provide real-time monitoring or diagnosis, nor is it intended to take the place of your healthcare provider. Please work with your healthcare provider to understand any symptoms you may experience and get medical advice.
What do I have to do to participate?
- Complete a welcome survey
- Complete short daily surveys about your symptoms
- Complete surveys about your condition
- Complete surveys about your experience in the study
- Continue wearing and using the wearable devices and/or apps you have linked to your Evidation account (if applicable)
What data may be collected from me or analyzed as part of this project?
- Your survey responses, which include: demographic information, as well as basic health information to understand your migraine experience; and
- Information from your Evidation profile, including zip code, age, race/ethnicity, sex/gender, and relevant medical diagnoses you have provided in your responses to survey questions (previously and added during the program); and
- Responses to Evidation check-in questions, including daily sleep, daily mood, and monthly quality of life questions; and
- Data related to how you interact with the program and program activities; and
- Your connected activity data (e.g., steps, sleep, heart rate), which will be regularly analyzed during the course of the program.
Who will have access to my data and how will my data be used?
If you choose to participate, we will perform ongoing analyses of the above described data. Limited Evidation team members will have access to the coded dataset (meaning that your directly identifying information is removed) to conduct this analyses. Your data may also be used to operate and improve our services, including development of new products, features and functionalities, and for the design of future programs.
Additionally, if you choose to participate, we may also share a summary analysis of the aggregate (combined) surveys and data back with the Evidation community. No individual information will be shared. We may also share coded data collected from the app and surveys with certain research partners.
As part of your participation, you may be asked to share your coded data with a third party, such as a research partner. Sharing your coded data with a third party is completely optional. We will provide additional information about any data sharing opportunity so you can make an informed decision. Deciding to not participate in these additional data sharing opportunities will not impact your ability to participate in MigraineSmart. We will not request additional consent from you to share any aggregated information.
Your responses may also be used to help match you with future surveys or related opportunities where you can choose to participate and earn rewards.
What if I want to stop taking part in MigraineSmart?
You can choose to stop participating in MigraineSmart at any time. You can un-enroll at any time by navigating to your Profile and accessing your current programs. If you choose to stop taking part in MigraineSmart, your data will no longer be collected through the program.
Changes
Evidation reserves the right to modify or terminate these terms, with notice, at Evidation’s sole discretion. The modified version of the terms shall be available to you here. Please note by continuing your participation in the program you are agreeing to the program terms.
Who to contact
For any questions, concerns, or complaints about the program, or to remove yourself from the program (at any time), you can use the Contact Us tool at the top right of this page.